Eian and Will have always been close. The love to fight, play and get in trouble together. They are best friends and brothers.
Showing posts with label Eian. Show all posts
Showing posts with label Eian. Show all posts
Tuesday, October 9, 2012
Monday, October 1, 2012
Happy October
Sunday, December 4, 2011
Christmas Is Coming
Yes my friends it's that time of year again. CHRISTMAS!!!!!!
I'm not sure why I've been having such a hard time over the last year or so keeping up with this blog. I used to do so good. Dunno what it is....I mean sure the 3 boys keep me busy and all but I find time to Facebook...Sure I've had to stop writing twice since I started this post, once to save my 1 year old that got stuck in the kitchen cabinet and again to pour the sleepy 4 year old some milk. The boys have been awake since before 6:30am and are in need of naps or maybe its mama that needs a nap. Anyways......The kids are doing good. We've been in NY for almost a year now.
Alex is doing great in school. His teacher just loves him. He needs to work on not yelling out the answers and letting others have a chance but his teacher said he's always right lol. He's learning to read and doing good at it. He says he loves math and he learned to tie his shoes (thanks to Mr Paul making him sit and practice till he learned). He told me he wants to spend his summer in SC again this coming summer. I told him I'd have to see what I could do. He's made 2 good friends up here and they take turns spending nights with each other on the weekends and let me tell you have 5 boys in the house is fun lol.
Eian is learning so much in school. His communication has improved so much. He still has a lot to work on, but he's finally putting 3-4 words together to make a sentence. Even if it is "dada woo phone" he still got his point across telling on Will for playing with daddy's phone. I wish communication was as easy for him as it is for his brothers. We are trying to find away to get him an Ipad to use to help with it, but that will be after tax time before we can make it happen. I'm working on making him a picture wall to help at home. His behaviors are about the same, still hitting, biting and throwing things when he gets made which is very often. He finally got a one on one aide at school, hopefully that will cut down on those behaviors at school. After the new year I'm gonna work on getting him so respite care from the Army (he qualifies) so that I can get a small break. We are still no were near potty training but he's gotten to the point where only diaper he doesn't wet threw are the over night ones.
Will is so much like Alex and Eian it ain't funny. He talks nonstop and is a mean little thing. He has started talking back. He loves to dance and play with his brothers. He thinks he's just as big as they are. He's still a little peanut at under 24lbs and still in size 3 diapers. He loves to help mommy around the house. This year is gonna be a fun Christmas for him now that he's older. I need to take him back to the dr he's got one more shot he needs to get.
Oh did I tell you I've had to stop 3 more times since the last time. Dirty diaper, pour Alex a drink and get little kids outta my bedroom where daddy is sleeping. We are going home for Christmas, we leave in 13 days. I can't wait I miss the South and my family and friends. I miss my Shuggy dog too. I'm almost finished wrapping gifts. I got a few more bows to make before I leave for Christmas and clean the house. I asked Joel last month what he wanted for Christmas and he told me there wasn't anything he wanted so we decided to have a real date night while we are home. Just me and him, no worrying about kids, sitters, or anything. So family is gonna watch the kids and we are gonna have some much needed us time as our Christmas gifts to each other. I can't wait. Well I guess I better finish up the tiny kid got quite and no telling what he's into.
I'm not sure why I've been having such a hard time over the last year or so keeping up with this blog. I used to do so good. Dunno what it is....I mean sure the 3 boys keep me busy and all but I find time to Facebook...Sure I've had to stop writing twice since I started this post, once to save my 1 year old that got stuck in the kitchen cabinet and again to pour the sleepy 4 year old some milk. The boys have been awake since before 6:30am and are in need of naps or maybe its mama that needs a nap. Anyways......The kids are doing good. We've been in NY for almost a year now.
Alex is doing great in school. His teacher just loves him. He needs to work on not yelling out the answers and letting others have a chance but his teacher said he's always right lol. He's learning to read and doing good at it. He says he loves math and he learned to tie his shoes (thanks to Mr Paul making him sit and practice till he learned). He told me he wants to spend his summer in SC again this coming summer. I told him I'd have to see what I could do. He's made 2 good friends up here and they take turns spending nights with each other on the weekends and let me tell you have 5 boys in the house is fun lol.
Eian is learning so much in school. His communication has improved so much. He still has a lot to work on, but he's finally putting 3-4 words together to make a sentence. Even if it is "dada woo phone" he still got his point across telling on Will for playing with daddy's phone. I wish communication was as easy for him as it is for his brothers. We are trying to find away to get him an Ipad to use to help with it, but that will be after tax time before we can make it happen. I'm working on making him a picture wall to help at home. His behaviors are about the same, still hitting, biting and throwing things when he gets made which is very often. He finally got a one on one aide at school, hopefully that will cut down on those behaviors at school. After the new year I'm gonna work on getting him so respite care from the Army (he qualifies) so that I can get a small break. We are still no were near potty training but he's gotten to the point where only diaper he doesn't wet threw are the over night ones.
Will is so much like Alex and Eian it ain't funny. He talks nonstop and is a mean little thing. He has started talking back. He loves to dance and play with his brothers. He thinks he's just as big as they are. He's still a little peanut at under 24lbs and still in size 3 diapers. He loves to help mommy around the house. This year is gonna be a fun Christmas for him now that he's older. I need to take him back to the dr he's got one more shot he needs to get.
Oh did I tell you I've had to stop 3 more times since the last time. Dirty diaper, pour Alex a drink and get little kids outta my bedroom where daddy is sleeping. We are going home for Christmas, we leave in 13 days. I can't wait I miss the South and my family and friends. I miss my Shuggy dog too. I'm almost finished wrapping gifts. I got a few more bows to make before I leave for Christmas and clean the house. I asked Joel last month what he wanted for Christmas and he told me there wasn't anything he wanted so we decided to have a real date night while we are home. Just me and him, no worrying about kids, sitters, or anything. So family is gonna watch the kids and we are gonna have some much needed us time as our Christmas gifts to each other. I can't wait. Well I guess I better finish up the tiny kid got quite and no telling what he's into.
Sunday, October 16, 2011
31 for 21 days 14-16: Blog Entries From The Past
Here are some blog post from the past. Most are the first few months after Eian was born.
October 7, 2007 - Sunday
OMG My Water Broke (Birth Story)
Tuesday i woke up to my phone ringing it was my grandma she was having trouble breathing and i got up at 5:30am and me and alex took her to the er we where there til 8 and we took her home. i had my appt at 9 am to see my new dr and have the gbs done so i left alex at my grandparents and went. i waited an hour to see the dr and after the appt we called and set my new c-sec date since i was changing hospitals and set it for 10-26 well i left and went back to get alex. we stayed there until about 12:30pm and i got alex up to leave took him to the car and my water broke. so we had my grandma and aunt take us to my moms so she could take us to the hospital i called joel at work and told him. we all got to the hospital at about 2 and it took my dr 2 hrs to get there all the time i'm leaking and having contrations. well after my dr got there they decided to transfer me to a level 3 hospital since i was only 35 weeks and off we went in the ambluance. we got there at about 6 and had to wait until 8pm for the c-sec. we went back and it took them almost an hour to get Eian out cuz i had so much scar tissue from alex. he came out at 8:59pm screaming and he weighted 6lbs and 5oz and is doing great he's a lil sleepy head and you have to wake him to geth him to eat but we got to come home today. his big brother alex just loves him so much. i'm doing good too. this c-sec was much easier than my first.
November 12, 2007 - MondayEian Update
Eian will be 6 weeks old tomorrow and last friday he weighted 8lbs 8oz. he's growing good. he's so sweet and loving. Alex is so protective of him it's so sweet he'll tell people no mine baby bubba. We did find out that Eian has Down Syndrome. Don't be sad for us. I feel like God picked us and we are truely lucky to have him. We are prepared to do whatever it takes for him to have a wonderful life just as we will with Alex. We are taking it one day at a time. We have a wonderful family and Super friends that support us and are will to help us any way they can. I'll keep you updated and post new pictures. This is a journey I look forward to. It maybe a long road but with love we'll make it. and thats what we have is lots of love.
He goes tomorrow at 8am for an u/s of his tummy since he's been throwing up a good bit i've switched his formula 3 times he's down to throwing up about once a day now. but i'm switching his formula one more time tomorrow cross your fingers that works
November 16, 2007 - Friday
Appts, Appts, Appts.
Seems everytime I turn around we have an appt for something but the craziness hasn't even begun yet. once Eian starts Therpy and all I'll be super busy.
We finally got his appt with the ped. cardiologist to have his heart check out. and for those who don't know heart problems go along with Down Syndrome. he's not had his heart looked at any yet so i'm really ready for this appt to make sure everything looks good.
I finally got in touch with Early Intervention. they took my name and info and said he does quilfy for it since he has DS. which is good. that will be his therpies and so forth until he's 3. They said that I would get a call from our local person either the begining of next week or the next since it is a holiday next week.
The dr Switched his milk and he seems to be doing better he's on Enfamil Nutramigen it's only $25 a can lol. lucky for us once i get the paper in to wic from the dr they will cover it thank god.
Eian went to the dr yesterday and he's up to 9lbs 1oz thats great he's gained from 8lbs 8oz in just 6 days. my lil piggy loves to eat.
I gotta pick up Eian's 1 month pictures today so be looking for them i'll get them scanned and posted for all to see.
I'm also gonna take the boys to see santa if he's at the mall today so be looking for that picture too.
Think thats it. Also be watching for my Down syndrome Blinkies coming soon. so everyone can show their support
November 25, 2007 - SundayWhat is Down Syndrome?What is Down syndrome?
Down syndrome is a lifelong condition in which a person is born with distinct physical features, such as a flat face and short neck, and some degree of cognitive disability (mental retardation). Although Down syndrome is permanent, most people who have it are able to live healthy, productive lives. Given the proper care and help they need, children with Down syndrome can flourish and grow into healthy and happy adults.
What causes Down syndrome?
Down syndrome is caused by abnormal cell division very early in fetaldevelopment. This abnormal division produces an extra or irregularchromosome in some or all of the body's cells. Chromosomes carry genetic material (DNA), or genes, to every cell in the body. The extra or irregular chromosome causes the body and brain to develop differently than in people who have normal chromosomes.
What are the symptoms?
Many children with Down syndrome have noticeable features, such as a flat face with small ears and mouth. Most young children have weak muscles (hypotonia), which generally improves by late childhood.
Below-average intelligence and physical problems often result indevelopmental disabilities. A child with Down syndrome may also be born with heart, intestinal, or ear and respiratory defects. These health conditions often lead to other problems, such as respiratory infections or difficulty hearing.
How is Down syndrome diagnosed?
During your pregnancy, you may choose to have tests to screen for Down syndrome and other abnormalities in your fetus. Screening does not diagnose Down syndrome but rather provides information about the likelihood that your fetus will have the condition. Screening tests include:
Fetal ultrasound, which uses reflected sound waves to provide an image of your fetus and placenta. During the ultrasound the technician may measure the thickness your fetus's neck (nuchal fold). Swelling in this area may indicate an increased risk of Down syndrome.
Maternal serum triple or quadruple screen test. This test measures substances in your blood that can give clues to your fetus's health.
To confirm a diagnosis during your pregnancy, you can have a chromosome analysis called a karyotype. This test can be done on tissue obtained through chorionic villus sampling or on amniotic fluid obtained throughamniocentesis. Getting the sample for a karyotype slightly increases the chance for miscarriage. For this reason, karyotype testing is usually only recommended if screening tests (ultrasound or triple/quadruple screening) are positive for Down syndrome and/or the fetus is at increased risk for Down syndrome, such as if you are age 35 or older.
Karyotype testing can also be done in the first few days after birth from a sample of the baby's blood. It may take 2 to 3 weeks to get the complete test results. However, a doctor often has a good sense of whether or not the diagnosis will be positive based on the baby's appearance, the results of a physical exam, family history, and results of earlier screening tests (if done during pregnancy).
How is it treated?
You and your child's doctor will make a specific treatment plan based on your child's needs. This plan is adjusted as your child grows and develops. Early treatment focuses on identifying and treating health problems. Speech and language therapy, physical therapy, and nutritional counseling are examples of early and continuing treatment.
As your child matures, working with an occupational therapist can help him or her to develop job and independent living skills. A physical therapist may add exercises, and a counselor may offer ways to work on managing emotions.
Proper medical care, emotional support, and social opportunities will all help your child to reach his or her full potential. Many people with Down syndrome live into their 50s and some into their 60s or older.
MORE THAN ANYTHING PEOPLE WITH DOWN SYNDROME ARE JUST THAT PEOPLE, WHO FEEL, LOVE, LAUGH, CRY, DREAM, AND ACCOMPLISH THINGS. THEY WANT TO BE TREATED WITH RESPECT JUST LIKE EVERYONE ELSE. DOWN SYNDROME IS NOT WHO THEY ARE IT'S JUST A PART OF THEM. GET TO KNOW THEM YOU'LL SEE.
October 7, 2007 - Sunday
OMG My Water Broke (Birth Story)
Tuesday i woke up to my phone ringing it was my grandma she was having trouble breathing and i got up at 5:30am and me and alex took her to the er we where there til 8 and we took her home. i had my appt at 9 am to see my new dr and have the gbs done so i left alex at my grandparents and went. i waited an hour to see the dr and after the appt we called and set my new c-sec date since i was changing hospitals and set it for 10-26 well i left and went back to get alex. we stayed there until about 12:30pm and i got alex up to leave took him to the car and my water broke. so we had my grandma and aunt take us to my moms so she could take us to the hospital i called joel at work and told him. we all got to the hospital at about 2 and it took my dr 2 hrs to get there all the time i'm leaking and having contrations. well after my dr got there they decided to transfer me to a level 3 hospital since i was only 35 weeks and off we went in the ambluance. we got there at about 6 and had to wait until 8pm for the c-sec. we went back and it took them almost an hour to get Eian out cuz i had so much scar tissue from alex. he came out at 8:59pm screaming and he weighted 6lbs and 5oz and is doing great he's a lil sleepy head and you have to wake him to geth him to eat but we got to come home today. his big brother alex just loves him so much. i'm doing good too. this c-sec was much easier than my first.
November 12, 2007 - MondayEian Update
Eian will be 6 weeks old tomorrow and last friday he weighted 8lbs 8oz. he's growing good. he's so sweet and loving. Alex is so protective of him it's so sweet he'll tell people no mine baby bubba. We did find out that Eian has Down Syndrome. Don't be sad for us. I feel like God picked us and we are truely lucky to have him. We are prepared to do whatever it takes for him to have a wonderful life just as we will with Alex. We are taking it one day at a time. We have a wonderful family and Super friends that support us and are will to help us any way they can. I'll keep you updated and post new pictures. This is a journey I look forward to. It maybe a long road but with love we'll make it. and thats what we have is lots of love.
He goes tomorrow at 8am for an u/s of his tummy since he's been throwing up a good bit i've switched his formula 3 times he's down to throwing up about once a day now. but i'm switching his formula one more time tomorrow cross your fingers that works
November 16, 2007 - Friday
Appts, Appts, Appts.
Seems everytime I turn around we have an appt for something but the craziness hasn't even begun yet. once Eian starts Therpy and all I'll be super busy.
We finally got his appt with the ped. cardiologist to have his heart check out. and for those who don't know heart problems go along with Down Syndrome. he's not had his heart looked at any yet so i'm really ready for this appt to make sure everything looks good.
I finally got in touch with Early Intervention. they took my name and info and said he does quilfy for it since he has DS. which is good. that will be his therpies and so forth until he's 3. They said that I would get a call from our local person either the begining of next week or the next since it is a holiday next week.
The dr Switched his milk and he seems to be doing better he's on Enfamil Nutramigen it's only $25 a can lol. lucky for us once i get the paper in to wic from the dr they will cover it thank god.
Eian went to the dr yesterday and he's up to 9lbs 1oz thats great he's gained from 8lbs 8oz in just 6 days. my lil piggy loves to eat.
I gotta pick up Eian's 1 month pictures today so be looking for them i'll get them scanned and posted for all to see.
I'm also gonna take the boys to see santa if he's at the mall today so be looking for that picture too.
Think thats it. Also be watching for my Down syndrome Blinkies coming soon. so everyone can show their support
November 25, 2007 - SundayWhat is Down Syndrome?What is Down syndrome?
Down syndrome is a lifelong condition in which a person is born with distinct physical features, such as a flat face and short neck, and some degree of cognitive disability (mental retardation). Although Down syndrome is permanent, most people who have it are able to live healthy, productive lives. Given the proper care and help they need, children with Down syndrome can flourish and grow into healthy and happy adults.
What causes Down syndrome?
Down syndrome is caused by abnormal cell division very early in fetaldevelopment. This abnormal division produces an extra or irregularchromosome in some or all of the body's cells. Chromosomes carry genetic material (DNA), or genes, to every cell in the body. The extra or irregular chromosome causes the body and brain to develop differently than in people who have normal chromosomes.
What are the symptoms?
Many children with Down syndrome have noticeable features, such as a flat face with small ears and mouth. Most young children have weak muscles (hypotonia), which generally improves by late childhood.
Below-average intelligence and physical problems often result indevelopmental disabilities. A child with Down syndrome may also be born with heart, intestinal, or ear and respiratory defects. These health conditions often lead to other problems, such as respiratory infections or difficulty hearing.
How is Down syndrome diagnosed?
During your pregnancy, you may choose to have tests to screen for Down syndrome and other abnormalities in your fetus. Screening does not diagnose Down syndrome but rather provides information about the likelihood that your fetus will have the condition. Screening tests include:
Fetal ultrasound, which uses reflected sound waves to provide an image of your fetus and placenta. During the ultrasound the technician may measure the thickness your fetus's neck (nuchal fold). Swelling in this area may indicate an increased risk of Down syndrome.
Maternal serum triple or quadruple screen test. This test measures substances in your blood that can give clues to your fetus's health.
To confirm a diagnosis during your pregnancy, you can have a chromosome analysis called a karyotype. This test can be done on tissue obtained through chorionic villus sampling or on amniotic fluid obtained throughamniocentesis. Getting the sample for a karyotype slightly increases the chance for miscarriage. For this reason, karyotype testing is usually only recommended if screening tests (ultrasound or triple/quadruple screening) are positive for Down syndrome and/or the fetus is at increased risk for Down syndrome, such as if you are age 35 or older.
Karyotype testing can also be done in the first few days after birth from a sample of the baby's blood. It may take 2 to 3 weeks to get the complete test results. However, a doctor often has a good sense of whether or not the diagnosis will be positive based on the baby's appearance, the results of a physical exam, family history, and results of earlier screening tests (if done during pregnancy).
How is it treated?
You and your child's doctor will make a specific treatment plan based on your child's needs. This plan is adjusted as your child grows and develops. Early treatment focuses on identifying and treating health problems. Speech and language therapy, physical therapy, and nutritional counseling are examples of early and continuing treatment.
As your child matures, working with an occupational therapist can help him or her to develop job and independent living skills. A physical therapist may add exercises, and a counselor may offer ways to work on managing emotions.
Proper medical care, emotional support, and social opportunities will all help your child to reach his or her full potential. Many people with Down syndrome live into their 50s and some into their 60s or older.
MORE THAN ANYTHING PEOPLE WITH DOWN SYNDROME ARE JUST THAT PEOPLE, WHO FEEL, LOVE, LAUGH, CRY, DREAM, AND ACCOMPLISH THINGS. THEY WANT TO BE TREATED WITH RESPECT JUST LIKE EVERYONE ELSE. DOWN SYNDROME IS NOT WHO THEY ARE IT'S JUST A PART OF THEM. GET TO KNOW THEM YOU'LL SEE.
Thursday, October 13, 2011
31 for 21 Days 10-13: My Silly Eian
Sorry I've been slacking again. I'll do better so enjoy some Eian Pictures of Eian doing what he does best being SILLY!
Friday, October 7, 2011
31 for 21 day 7: The Difference (repost)
Today is a repost of a topic I blogged about in Jan 2010.
Friday, January 1, 2010
Is It Different?
Is raising a child with special needs different than a typical child?I've gotten this question serval times. I'm sure more people wonder but don't ask. I've been writing the post in my head for months now. So I'm finally gonna write it here.
My answer is Yes and No.
I really dont see my boys as different than any other set of siblings. They are alot alike and alot different than each other. As I sit here watching my baby ( who's not a baby anymore) sleeping on the couch, I think about the differences in raising him and his brother. Both were easy babies. No health problems other than being lactose intolerant. Both came home with me from the hospital.
(This is were I have to pull out the baby books).
Both were sleeping throught the night and had their 1st smiles around 1 month old. Alex laughted at 2 months and Eian at 3 months. Alex rolled over at 4 months and Eian at 2 1/2 months. Alex sat alone at 6 months and Eian did at 8 months. Alex crawled at 8 months and Eian at 10 months. Alex stood at 9 months and walked at 9 1/2 months. Eian stood at 10 1/2 months but didnt walk til he was 16 months. Alex waved bye-bye at 8 months and Eian didn't until he was 17 months old. Alex's 1st word was at 5 months and Eian's at 8 1/2 months.You can see that for the most part Eian wasn't too far behind his brother in hitting milestones. Eian did have to work harder to hit them where they just happened for Alex.
At 2 years old, Eian's not as verbal as most kids his age. But he's pretty good at letting you know what he wants. Don't get me wrong Eian talks and can talk up a storm and say anything he wants(some things he shouldn't) but only when Eian wants to. He won't say a word if he doesn't want too. At 2 years old Alex wouldn't shut up, and still won't.
With having a special needs child I've met more doctors and specialist than I ever did with my "typical" child. Eian does 2 hours of therapy a week (1hr OT & 1hr ST) and an hour of Early intervention a week at home. Alex has been in pre-k since age 3 so he didn't feel left out. That year and a half of pre-k has done a wonder of good for Alex. Next year Eian will enter pre-k.
Do you treat them the same? Is the next question I get. Why yes I do. They both get dispilned, they both go and do things. I don't go anywhere with 1 that I wouldn't take the other. Joe wrestles with Eian just like he does with Alex. I do think in some ways I treat Eian a little different but it's only because it can't be helped. Like the bottle at 2 years old Eian is still on the bottle 24/7. I took it waya from Alex shortly after his 1st birthday and I would have Eian too but he's still not able to control his suck. So if he drinks from a sippy cup or a nipple that isn't slow flow he chokes and leaks all over himself. Now we do work with a sippy cup and he's getting better but still nowhere near going full time with one. My goal had been 1st of the year but with his T & A coming up on the 11th I'm not even gonna go there. I had thought that I would have him off before Will gets here in April but I'm not gonna push that either. He's gonna have enough adjustment issues with a new baby as it is.
What I'm trying to say(take my post how you want) I love my boys just the same, and I would not change either one of them. Alex made me a mother which is what I had always dreamed of. Eian made me a better mother and a better person. I have learned to enjoy everyday and celebrate every little milestone. Even taking off the socks that now I wish he hadn't ever learned lol.
My wish for Will is for him to be just as happy and healthy as both his brothers, with and without Down syndrome.
My answer is Yes and No.
I really dont see my boys as different than any other set of siblings. They are alot alike and alot different than each other. As I sit here watching my baby ( who's not a baby anymore) sleeping on the couch, I think about the differences in raising him and his brother. Both were easy babies. No health problems other than being lactose intolerant. Both came home with me from the hospital.
(This is were I have to pull out the baby books).
Both were sleeping throught the night and had their 1st smiles around 1 month old. Alex laughted at 2 months and Eian at 3 months. Alex rolled over at 4 months and Eian at 2 1/2 months. Alex sat alone at 6 months and Eian did at 8 months. Alex crawled at 8 months and Eian at 10 months. Alex stood at 9 months and walked at 9 1/2 months. Eian stood at 10 1/2 months but didnt walk til he was 16 months. Alex waved bye-bye at 8 months and Eian didn't until he was 17 months old. Alex's 1st word was at 5 months and Eian's at 8 1/2 months.You can see that for the most part Eian wasn't too far behind his brother in hitting milestones. Eian did have to work harder to hit them where they just happened for Alex.
At 2 years old, Eian's not as verbal as most kids his age. But he's pretty good at letting you know what he wants. Don't get me wrong Eian talks and can talk up a storm and say anything he wants(some things he shouldn't) but only when Eian wants to. He won't say a word if he doesn't want too. At 2 years old Alex wouldn't shut up, and still won't.
With having a special needs child I've met more doctors and specialist than I ever did with my "typical" child. Eian does 2 hours of therapy a week (1hr OT & 1hr ST) and an hour of Early intervention a week at home. Alex has been in pre-k since age 3 so he didn't feel left out. That year and a half of pre-k has done a wonder of good for Alex. Next year Eian will enter pre-k.
Do you treat them the same? Is the next question I get. Why yes I do. They both get dispilned, they both go and do things. I don't go anywhere with 1 that I wouldn't take the other. Joe wrestles with Eian just like he does with Alex. I do think in some ways I treat Eian a little different but it's only because it can't be helped. Like the bottle at 2 years old Eian is still on the bottle 24/7. I took it waya from Alex shortly after his 1st birthday and I would have Eian too but he's still not able to control his suck. So if he drinks from a sippy cup or a nipple that isn't slow flow he chokes and leaks all over himself. Now we do work with a sippy cup and he's getting better but still nowhere near going full time with one. My goal had been 1st of the year but with his T & A coming up on the 11th I'm not even gonna go there. I had thought that I would have him off before Will gets here in April but I'm not gonna push that either. He's gonna have enough adjustment issues with a new baby as it is.
What I'm trying to say(take my post how you want) I love my boys just the same, and I would not change either one of them. Alex made me a mother which is what I had always dreamed of. Eian made me a better mother and a better person. I have learned to enjoy everyday and celebrate every little milestone. Even taking off the socks that now I wish he hadn't ever learned lol.
My wish for Will is for him to be just as happy and healthy as both his brothers, with and without Down syndrome.
Since writing that post, Will was born without Down syndrome, Eian is an awesome big brother most of the time. I've watched Eian blossom when we increased his therapies. He did half a year in the same 3k program that Alex did and did wonderful. Sadly we had to move. Since moving we decided to put Eian in a special needs preschool here in NY. He finished out the 3k part, did summer school, and is now in 4k there. He gets all his therapies there along with a "typical" preschool setting. He's having alot of behavior issues this year, hitting, biting and kicking. I'm not really sure whats up with it as he is having the same problems at home.
Thursday, October 6, 2011
Wednesday, October 5, 2011
October is Down Syndrome Awareness Month 31 for 21 Days 1-5
Even though I'm getting a 5 day late start (my bad) I'll be doing 31 for 21.
So here are post 1-5 all rolled into one :)
Day 1: Down Syndrome Facts
My face may be different
But my feelings the same
I laugh and I cry
And I take pride in my gains
I was sent here among you
To teach you to love
As God in the heavens
Looks down from above
To Him I'm no different
His love knows no bounds
It's those here among you
In cities and towns
That judge me by standards
That man has imparted
But this family I've chosen
Will help me get started
For I'm one of the children
So special and few
That came here to learn
The same lessons as you
That love is acceptance
It must come from the heart
We all have the same purpose
Though not the same start
The Lord gave me life
To live and embrace
And I'll do it as you do
But at my own pace
So here are post 1-5 all rolled into one :)
Day 1: Down Syndrome Facts
• Down syndrome occurs when an individual has three, rather than two, copies of the 21st chromosome. This additional genetic material alters the course of development and causes the characteristics associated with Down syndrome.
• Down syndrome is the most commonly occurring chromosomal condition. One in every 691 babies is born with Down syndrome.
• There are more than 400,000 people living with Down syndrome in the United States
• Down syndrome occurs in people of all races and economic levels.
• The incidence of births of children with Down syndrome increases with the age of the mother. But due to higher fertility rates in younger women, 80% of children with Down syndrome are born to women under 35 years of age.
• People with Down syndrome have an increased risk for certain medical conditions such as congenital heart defects, respiratory and hearing problems, Alzheimer's disease, childhood leukemia, and thyroid conditions. Many of these conditions are now treatable, so most people with Down syndrome lead healthy lives.
• A few of the common physical traits of Down syndrome are low muscle tone, small stature, an upward slant to the eyes, and a single deep crease across the center of the palm. Every person with Down syndrome is a unique individual and may possess these characteristics to different degrees or not at all.
• Life expectancy for people with Down syndrome has increased dramatically in recent decades - from 25 in 1983 to 60 today.
• People with Down syndrome attend school, work, participate in decisions that affect them, and contribute to society in many wonderful ways.
• All people with Down syndrome experience cognitive delays, but the effect is usually mild to moderate and is not indicative of the many strengths and talents that each individual possesses.
• Quality educational programs, a stimulating home environment, good health care, and positive support from family, friends and the community enable people with Down syndrome to develop their full potential and lead fulfilling lives.
• Researchers are making great strides in identifying the genes on Chromosome 21 that cause the characteristics of Down syndrome. Many feel strongly that it will be possible to improve, correct or prevent many of the problems associated with Down syndrome in the future.
(from the NDSS.Org)
Day 2: My Eian Turns 4
4 years ago today Eian came into this world full of surprises. 5 weeks early and with and extra chromosome. He's yet to stop surprising me. The boy is full of life and loves everyone. He is so social and makes friends where ever he goes. He's talking and signing more and more everyday. I'm so proud of my little monster.
Day 3: Down Syndrome Creed
But my feelings the same
I laugh and I cry
And I take pride in my gains
I was sent here among you
To teach you to love
As God in the heavens
Looks down from above
To Him I'm no different
His love knows no bounds
It's those here among you
In cities and towns
That judge me by standards
That man has imparted
But this family I've chosen
Will help me get started
For I'm one of the children
So special and few
That came here to learn
The same lessons as you
That love is acceptance
It must come from the heart
We all have the same purpose
Though not the same start
The Lord gave me life
To live and embrace
And I'll do it as you do
But at my own pace
Day 4: Watertown NY Buddy Walk
Day 5: My DS Video (from when Eian was a baby)
I need to update this but I wanted to share this again.
Saturday, October 2, 2010
Happy 3rd Birthday Eian!
3 years ago today you rocked my world Eian. You made us a family of 4, Alex a big brother, but there was more to you than met the eye the day you were born. See you blessed us with a gift like no other, Down Syndrome. We didn't know it yet but you changed our lifes forever, made us better people. You came 5 weeks early, 6lbs 5oz. Smallest of my 3 boys. You were quiet and didn't cry. Man has that changed now, you're my loudest of the 3 now. These past 3 years have been a rollercoaster, but I'd take that ride any day. E you are one of my 3 favorite little boys. Happy Birthday E-Dude! You Rock!
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