October 7, 2007 - Sunday
OMG My Water Broke (Birth Story)
Tuesday i woke up to my phone ringing it was my grandma she was having trouble breathing and i got up at 5:30am and me and alex took her to the er we where there til 8 and we took her home. i had my appt at 9 am to see my new dr and have the gbs done so i left alex at my grandparents and went. i waited an hour to see the dr and after the appt we called and set my new c-sec date since i was changing hospitals and set it for 10-26 well i left and went back to get alex. we stayed there until about 12:30pm and i got alex up to leave took him to the car and my water broke. so we had my grandma and aunt take us to my moms so she could take us to the hospital i called joel at work and told him. we all got to the hospital at about 2 and it took my dr 2 hrs to get there all the time i'm leaking and having contrations. well after my dr got there they decided to transfer me to a level 3 hospital since i was only 35 weeks and off we went in the ambluance. we got there at about 6 and had to wait until 8pm for the c-sec. we went back and it took them almost an hour to get Eian out cuz i had so much scar tissue from alex. he came out at 8:59pm screaming and he weighted 6lbs and 5oz and is doing great he's a lil sleepy head and you have to wake him to geth him to eat but we got to come home today. his big brother alex just loves him so much. i'm doing good too. this c-sec was much easier than my first.
November 12, 2007 - MondayEian Update
Eian will be 6 weeks old tomorrow and last friday he weighted 8lbs 8oz. he's growing good. he's so sweet and loving. Alex is so protective of him it's so sweet he'll tell people no mine baby bubba. We did find out that Eian has Down Syndrome. Don't be sad for us. I feel like God picked us and we are truely lucky to have him. We are prepared to do whatever it takes for him to have a wonderful life just as we will with Alex. We are taking it one day at a time. We have a wonderful family and Super friends that support us and are will to help us any way they can. I'll keep you updated and post new pictures. This is a journey I look forward to. It maybe a long road but with love we'll make it. and thats what we have is lots of love.
He goes tomorrow at 8am for an u/s of his tummy since he's been throwing up a good bit i've switched his formula 3 times he's down to throwing up about once a day now. but i'm switching his formula one more time tomorrow cross your fingers that works
November 16, 2007 - Friday
Appts, Appts, Appts.
Seems everytime I turn around we have an appt for something but the craziness hasn't even begun yet. once Eian starts Therpy and all I'll be super busy.
We finally got his appt with the ped. cardiologist to have his heart check out. and for those who don't know heart problems go along with Down Syndrome. he's not had his heart looked at any yet so i'm really ready for this appt to make sure everything looks good.
I finally got in touch with Early Intervention. they took my name and info and said he does quilfy for it since he has DS. which is good. that will be his therpies and so forth until he's 3. They said that I would get a call from our local person either the begining of next week or the next since it is a holiday next week.
The dr Switched his milk and he seems to be doing better he's on Enfamil Nutramigen it's only $25 a can lol. lucky for us once i get the paper in to wic from the dr they will cover it thank god.
Eian went to the dr yesterday and he's up to 9lbs 1oz thats great he's gained from 8lbs 8oz in just 6 days. my lil piggy loves to eat.
I gotta pick up Eian's 1 month pictures today so be looking for them i'll get them scanned and posted for all to see.
I'm also gonna take the boys to see santa if he's at the mall today so be looking for that picture too.
Think thats it. Also be watching for my Down syndrome Blinkies coming soon. so everyone can show their support
November 25, 2007 - SundayWhat is Down Syndrome?What is Down syndrome?
Down syndrome is a lifelong condition in which a person is born with distinct physical features, such as a flat face and short neck, and some degree of cognitive disability (mental retardation). Although Down syndrome is permanent, most people who have it are able to live healthy, productive lives. Given the proper care and help they need, children with Down syndrome can flourish and grow into healthy and happy adults.
What causes Down syndrome?
Down syndrome is caused by abnormal cell division very early in fetaldevelopment. This abnormal division produces an extra or irregularchromosome in some or all of the body's cells. Chromosomes carry genetic material (DNA), or genes, to every cell in the body. The extra or irregular chromosome causes the body and brain to develop differently than in people who have normal chromosomes.
What are the symptoms?
Many children with Down syndrome have noticeable features, such as a flat face with small ears and mouth. Most young children have weak muscles (hypotonia), which generally improves by late childhood.
Below-average intelligence and physical problems often result indevelopmental disabilities. A child with Down syndrome may also be born with heart, intestinal, or ear and respiratory defects. These health conditions often lead to other problems, such as respiratory infections or difficulty hearing.
How is Down syndrome diagnosed?
During your pregnancy, you may choose to have tests to screen for Down syndrome and other abnormalities in your fetus. Screening does not diagnose Down syndrome but rather provides information about the likelihood that your fetus will have the condition. Screening tests include:
Fetal ultrasound, which uses reflected sound waves to provide an image of your fetus and placenta. During the ultrasound the technician may measure the thickness your fetus's neck (nuchal fold). Swelling in this area may indicate an increased risk of Down syndrome.
Maternal serum triple or quadruple screen test. This test measures substances in your blood that can give clues to your fetus's health.
To confirm a diagnosis during your pregnancy, you can have a chromosome analysis called a karyotype. This test can be done on tissue obtained through chorionic villus sampling or on amniotic fluid obtained throughamniocentesis. Getting the sample for a karyotype slightly increases the chance for miscarriage. For this reason, karyotype testing is usually only recommended if screening tests (ultrasound or triple/quadruple screening) are positive for Down syndrome and/or the fetus is at increased risk for Down syndrome, such as if you are age 35 or older.
Karyotype testing can also be done in the first few days after birth from a sample of the baby's blood. It may take 2 to 3 weeks to get the complete test results. However, a doctor often has a good sense of whether or not the diagnosis will be positive based on the baby's appearance, the results of a physical exam, family history, and results of earlier screening tests (if done during pregnancy).
How is it treated?
You and your child's doctor will make a specific treatment plan based on your child's needs. This plan is adjusted as your child grows and develops. Early treatment focuses on identifying and treating health problems. Speech and language therapy, physical therapy, and nutritional counseling are examples of early and continuing treatment.
As your child matures, working with an occupational therapist can help him or her to develop job and independent living skills. A physical therapist may add exercises, and a counselor may offer ways to work on managing emotions.
Proper medical care, emotional support, and social opportunities will all help your child to reach his or her full potential. Many people with Down syndrome live into their 50s and some into their 60s or older.
MORE THAN ANYTHING PEOPLE WITH DOWN SYNDROME ARE JUST THAT PEOPLE, WHO FEEL, LOVE, LAUGH, CRY, DREAM, AND ACCOMPLISH THINGS. THEY WANT TO BE TREATED WITH RESPECT JUST LIKE EVERYONE ELSE. DOWN SYNDROME IS NOT WHO THEY ARE IT'S JUST A PART OF THEM. GET TO KNOW THEM YOU'LL SEE.
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